ALS Quick Facts

  • The cause of ALS is unknown.
  • There is no cure, but we are funding more research than ever before.
  • ALS can strike anyone… it knows no racial, ethnic or socioeconomic boundaries.
  • Over 90% of those diagnosed have no family history.
  • Between five to 10% of those diagnosed have a family history of ALS.
  • There are 30,000 people in the U.S. living with ALS at any given time.
  • Approximately 5,600 individuals are diagnosed annually.
  • ALS usually strikes those aged 40-70, with the peak age at 55.
  • The annual incidence of ALS is two per 100,000 population. Incidence is the occurrence of new cases of a condition. The incidence rate describes the frequency with which cases are identified.
  • The prevalence of ALS in the U.S. is said to be six to eight per 100,000 population. Prevalence is the total number of cases of a disease in a given population at a specific time.
  • Average life expectancy is roughly two to five years after diagnosis.
  • Half of all affected live more than three years after diagnosis.
  • ALS is five times more common than Huntington’s Disease and just as common as Multiple Sclerosis.
  • More people die each year from ALS than from Huntington’s Disease and Multiple Sclerosis.

Helpful ALS Links